Ella sure does have a laundry list of items going on with her. The doctor gave Monica a list, and wrote them down so like she said, I’d have a list of questions…..pretty funny he wrote them down for me. This is what we are looking at:

  • Wean her off of the ventilator. Slowly. She’s initiating almost all of the breaths on her own
  • Perform another Echo of her heart to decide about the PDA and if surgery is going to be needed to fix. Most likely.
  • Perform a contrast study of her hole in her esophagus and see if we can remove the chest tube and maybe get a feeding tube back in her. The poor girl has not really eaten since she was born and she needs food for weight!
  • Perform ultrasound of her kidneys. There’s been very high levels of  creatinine in her urine. Her flow is good, just the levels.
  • At last but not least, perform another ultrasound of her head on thrusday to see how the blood levels are and make sure the spinal fluid is able to drain well. This is the one that worries me the most.

That’s about it. It’s long, but it could always be worse I guess. Thanks everyone for thinking about her and putting her in your prayers. She really needs them. As always, I’ll keep everyone updated!